Genetic Thrombophilia Survey

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There is a lady I know who is a member of a Facebook group for clotting disorders, and she is currently working on research concerning genetic clotting disorders. My Osteonecrosis/Avascular Necrosis was caused by clotting disorders. If you know you … Continue reading

Updated Blood Coagulation Work Up and Quest Codes from Dr. Glueck

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Under clotting disorders I have now posted a copy of the new coagulation work up Dr. Glueck recommends for Osteonecrosis (Avascular Necrosis) patients. The codes on his work up are for LabCorp, I have posted a copy of the same … Continue reading

Spreading Awareness: Educating Ourselves and Each Other

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I am a member of several Osteonecrosis (Avascular Necrosis), Factor V Leiden, MTHFR and Blood clotting support groups on yahoo and Facebook. I often write about my blog and post it in the different groups and hope that I can … Continue reading

The importance of being tested for mutations in the MTHFR gene

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When there is a mutation in the MTHFR gene in an individual, along with another thrombophilic factor (ie. Factor V Leiden), the risk for thrombophilia is greatly increased. MTHFR stands for Methylenetetrahydrofolate reductase. Another term for MTHFR is NAD(P)H 5,10-methylenetetrahydrofolate. … Continue reading

Why ON (AVN) sufferers should have their homocysteine levels checked

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Homocysteine is an amino acid produced by the body. Elevated homocysteine levels are linked to high concentrations of endothelial asymmetric dimethylarginine (ADMA); a chemical found in blood plasma.  ADMA interferes with the synthesization of Nitric Oxide from L-Arginine. Nitric Oxide is … Continue reading

Why being tested for the e(NOS) mutation is important

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Yesterday I posted this under clotting disorders: What is the eNOS (Endothelial Nitric Oxide Synthase) gene T786C mutation When someone has a mutation in their eNOS gene it means that their body doesn’t produce an amino acid called L-Arginine (also … Continue reading

Grieving for the Life you Lost

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A year ago, yesterday, my husband and I moved to San Francisco from New York for a fresh start.  We had had a bad two years personally and work wise and we saw our move to the West coast as … Continue reading

Idiopathic Osteonecrosis (Avascular Necrosis)

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A lot of Osteonecrosis (Avascular Necrosis) patients are told their ON (AVN) is idiopathic. Meaning doctors can’t find a reason as to why that person developed ON (AVN). There is a reason for everything, it might not be known at … Continue reading

Welcome Osteonecrosis/Avascular Necrosis Sufferers

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Hello! This is an evolving blog that I started to educate the Osteonecrosis (Avascular Necrosis) Community and to bring us together so we can share our knowledge and experiences. There is little research done on Osteonecrosis (Avascular Necrosis) and the … Continue reading