There is a lady I know who is a member of a Facebook group for clotting disorders, and she is currently working on research concerning genetic clotting disorders.

My Osteonecrosis/Avascular Necrosis was caused by clotting disorders. If you know you have a clotting disorder or multiple disorders like me, and especially if you have ON (AVN), please participate in this survey. Thanks!!
https://redcapsurvey.wustl.edu/redcap/rssrvrs/tst_v1_3_1/surveys/?s=8W32QU