I had MRIs of my knees and femurs last week to see if the disease has regressed, or not, since starting on anticoagulants. I hope to have good news to share later. It would be wonderful to share a positive … Continue reading
Author Archives: osteonecrosis77
Sometimes my body dictates what I can do
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Hello, I was going to post a paper today about gene mutations leading to thrombophilia and reduce nitric oxide production being risk factors for osteonecrosis. Unfortunately, I have really bad tendinitis at the moment and I’m taking a few days … Continue reading
Spreading Awareness: Educating Ourselves and Each Other
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I am a member of several Osteonecrosis (Avascular Necrosis), Factor V Leiden, MTHFR and Blood clotting support groups on yahoo and Facebook. I often write about my blog and post it in the different groups and hope that I can … Continue reading
The importance of being tested for mutations in the MTHFR gene
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When there is a mutation in the MTHFR gene in an individual, along with another thrombophilic factor (ie. Factor V Leiden), the risk for thrombophilia is greatly increased. MTHFR stands for Methylenetetrahydrofolate reductase. Another term for MTHFR is NAD(P)H 5,10-methylenetetrahydrofolate. … Continue reading
Why ON (AVN) sufferers should have their homocysteine levels checked
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Homocysteine is an amino acid produced by the body. Elevated homocysteine levels are linked to high concentrations of endothelial asymmetric dimethylarginine (ADMA); a chemical found in blood plasma. ADMA interferes with the synthesization of Nitric Oxide from L-Arginine. Nitric Oxide is … Continue reading
Why being tested for the e(NOS) mutation is important
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Yesterday I posted this under clotting disorders: What is the eNOS (Endothelial Nitric Oxide Synthase) gene T786C mutation When someone has a mutation in their eNOS gene it means that their body doesn’t produce an amino acid called L-Arginine (also … Continue reading
Grieving for the Life you Lost
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A year ago, yesterday, my husband and I moved to San Francisco from New York for a fresh start. We had had a bad two years personally and work wise and we saw our move to the West coast as … Continue reading
Idiopathic Osteonecrosis (Avascular Necrosis)
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A lot of Osteonecrosis (Avascular Necrosis) patients are told their ON (AVN) is idiopathic. Meaning doctors can’t find a reason as to why that person developed ON (AVN). There is a reason for everything, it might not be known at … Continue reading
True Greatness and Inspiration
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Last night as I was watching the opening ceremonies for the Olympics I was thinking about the athletes and everything they had gone through to get where they were. I felt a twinge of jealousy as they cut to shots … Continue reading
Being Your Own Advocate
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One of the main reasons I started this blog was because my disease has made me driven and unrelenting when it comes to finding answers and help. I always thought I was an assertive person, but having something seriously wrong … Continue reading